Archive for the ‘My Story’ Category

Special Needs

January 25th, 2012

It’s funny how sometimes even when you sort of expect something it can still shock you when it happens.

On Friday we braved the snow and slush and went to Seattle Children’s Hospital for another neurologist appointment for Sage. It was the first appointment we had about her microcephaly where the doctor didn’t say, “well, it could be nothing…” the neurologist we saw was thorough, asking a lot of questions and spending a lot of time looking at Sage, checking her reflexes and movements. He was straight forward and clear, telling us that he definitely saw enough to concern him. He told us that her head is now 2.8 deviations and that since her weight and height are on the growth chart it’s called disproportionate microcephaly. He recommended an MRI, saying that it was the best place to start figuring out what is going on and would give us some direction.

And then it happened… He told us he thought we should start having someone work with her and getting her some early therapy. Then he gave us a packet for “children with special needs” It made my head spin…”special needs” I knew Sage had microcephaly. I knew there was a chance that she would have some delays, and although I knew that label was a possibility I hadn’t really imagined it or truly thought of my child as having special needs until that moment.

It was like a reality check for me.

Suddenly I was reminded of when I took a class in college on Teaching Children with Special Needs. I remember feeling convinced during that class, with an irrational intuition, that I was going to have a child with special needs. And I remember begging God to not let that happen. Now I look at Sage and I can’t imagine asking God that I wouldn’t have her and can’t imagine having any other child. But, I still wish I knew for certain that she would be able to live a completely full functioning, “normal” life. But, I knew in that moment that wasn’t a certainty I could have. It may yet turn out that way, but there’s enough concerns that I have to come to terms with the fact that it might not.

I sat there a minute a little stunned still by the term “special needs”.

I couldn’t deny it anymore. I couldn’t justify the fact that she hasn’t met her milestones. I couldn’t keep holding on to the “well, it could be nothing” statements.

All along I have sort of known this was coming. I knew something wasn’t normal. Not in the way you know that two plus two equals four but with an intuitive sort of knowing.

When she was six weeks old I had a vivid dream within a dream where things kept threatening Sage and I had to fight for her and protect her. At the most vivid part I saw a number of wasps and hornets stinging Sage. I woke up still in the dream and preceded to dream that everything that had happened in the dream within a dream was happening in real life. It was after having this dream that I knew we had to schedule Sage’s first well visit with the pediatrician.

Maybe it’s bad for me to say it but I’m glad that we didn’t go in earlier, glad that we had those two months of ignorance, to just be with Sage, bond with her and get to know her. Being able to bond with her without the uncertainties of microcephaly hanging over our head was precious and I’m grateful for it.

But, as we sat with the neurologist I knew that the time of denial was over. It was time for a new season. Time to grow up and face my new reality. Time to do the research. Time to make the phone calls. Time to get the help. Time to do whatever we can to make sure that my special little girl can have the best life possible.

On February 2nd Sage will have an MRI of her head and spine. It will be under general anesthesia. If you pray, pray for her safety, pray that we get the best possible answers, pray that we are able to get the results back quickly (as it is right now our follow up with neurology isn’t able to be scheduled until April – we don’t want to wait that long) and pray that we have no problem getting the MRI pre-approved with our insurance.

Rejoicing in the journey,
Bethany Stedman

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Microcephaly: A New Twist in our Journey

December 5th, 2011

A few weeks ago my daughter, Sage, was diagnosed with microcephaly. It essentially means that her head is measuring more than two deviations too small. Microcephaly is a neurological disorder and there are a lot of different reasons why this can happen and a wide variety of problems it can be associated with.

Our pediatrician recommended blood tests and an MRI to try and determine the cause and extent of the issue. So far the blood work has all come back normal and we have yet to do the MRI. We’ve also seen a neurologist and been referred to a geneticist. As we’ve learned a little more though, it seems likely that we will never know a cause or, in advance, how it might effect her. It also seems likely that she will have some developmental delays of some sort. They could be mild delays or severe delays, they may show up right away or not for a while, and at this point it seems we have no way of knowing.

I honestly feel weird writing about it, since I don’t feel like we really know anything. All we really know is that she’s measuring at 2.4 deviations and that there’s a good chance she will have some developmental delays, although there’s also a chance she could grow up without any noticeable delays at all. We just don’t know.

In some ways I’ve been really thankful that we found this out right in the middle of a move, when there’s lots to do and not much opportunity to stop and think. The little research I’ve been able to do has made me realize that maybe its better for my psyche if I don’t do any at all. It’s hard to feel so helpless, though, and to live with this constant unknown.

I love my little girl so much. We bonded so much more quickly than I did with my son. I look at her and my heart melts. I can’t imagine my life without her and have already sort of forgotten what life was like before she was born. I want her to have a wonderful and full life. I don’t want her quality of life to be diminished because of this. I don’t want her life to be more difficult because of this. It breaks my heart to think of all of the what-ifs and how this may affect her over time.

And then she locks eyes with me and smiles and I know that whatever comes we are going to be ok. My beautiful little girl will always be my beautiful little girl. And I feel ready to face whatever comes, together, as a family.

Rejoicing in the journey –
Bethany Stedman

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Sage’s Birth Story: Part Two

October 2nd, 2011

Now we come to the part of my labor which was not so light, where instead of feeling grounded and present I felt like I was falling apart at the seams. The contractions were very intense now, and close together. I felt like I was breaking, and couldn’t hold it together. I just wanted to cry. I needed far more support from Bryan and Shell than I had needed with my first labor. I tried to push with contractions, but still didn’t feel like anything was happening. At this point the physical pain seemed unbearable, but looking back (and I think I recognized this a little bit in the moment as well), even with as intense as the physical pain was the real struggle was with my psyche…it was emotional.

I felt weak, scared and tired. I didn’t feel like “one tough mamma.” Shell kept saying, “you’re so strong.” But, I didn’t believe her, I couldn’t believe her. I didn’t feel strong. I felt weak, in fact I felt all of the weaknesses and inadequacies that I’d wrestled with ever since becoming a mother two years ago come rushing over me. I felt like I couldn’t do it… and so I couldn’t. I didn’t really want to push her out. I was scared of feeling “that pain” again. I was scared of bleeding too much (as I had with Thaddeus). I was scared that she would be just as difficult as Thad was and scared that I wouldn’t be able to handle having two kids. I was scared that the pain was going to continue forever and just wanted it to be over, but I didn’t want to go through the only door that would make the pain stop.

Finally, I muttered out something about feeling discouraged. Shell decided to do an internal to see what was going on. I remember her putting her fingers against my coccyx on the inside and telling me that was where the baby needed to go, that I needed to push the baby into that space. I knew she was right and I tried to do what she was asking, but it was a half hearted attempt. As soon as she had touched that area I was flooded with the muscle memory of Thad’s birth, I remembered that spot and the pain it took to push Thad past it (Thad had gotten stuck at my coccyx since it hadn’t moved out of the way like it should have, Shell had to pull it out of the way and we are pretty sure I either broke or bruised it during that labor). The memory of that felt so tangible and I couldn’t bring myself to push past it.

It was at this point that Shell suggested we do something she called “the rotisserie” and took a moment to describe it to us. Basically the laboring women lays on her back for a contraction or two pushing her lower back into the floor then turns to lay on her side with her top leg bent and bottom leg relatively stretched out for a contraction or two and then on hands and knees for a contraction or two and then on the other side for a contraction or two and then back to her back for a contraction or two.

We did two rotations this way. I have never known pain like that. It was beyond intense, it was unbearable. I remember kind of hating Shell in that moment for making me do this. Normally I deal with contractions with a fair amount of movement so having to be in one position the whole contraction was excruciating and the fact that most of those positions were not comfortable positions for me made it extra hard.

During my last rotation Shell turned the water on in the bath and started filling it up, I can’t really explain the feeling I felt when I heard that tub turn on. On the one hand I was sort of ecstatic thinking that the end of the rotisserie must be soon and imagining how nice the water would feel. I spent almost all of my labor with Thad in the tub and felt such relief from that. Earlier in labor the tub had come up – I think my sister asked if I was going to use it – and I hesitated and didn’t really know how to answer. Shell said something about how it seemed I wanted to see which came first if I reached my breaking point or if the baby came. I remember thinking she was exactly right.

As I did that rotisserie and heard the tub filling up I knew I had reached my breaking point and it was time for the tub – really I felt like I had reached my breaking point long before this and was just so far past the breaking point as to be completely desperate by this time. I was also angry as the tub filled up though, because I just wanted to get in it right then, and Shell asked me to do another set on my back and on my side – I remember feeling really angry in that moment. I didn’t want to do any more. I wanted to get in the tub. I didn’t think I was capable of doing any more – I was already broken into pieces, there wasn’t any strength left. But, then I did it. When I thought that I was completely unable to, when I thought I had no strength left, when I thought I was already broken as far as I could be…I did it. I broke more. And even without strength I pressed through…screamed through, but made it.

When I finally got in the tub it was such a relief, but things were still moving pretty fast and intense. I remember the water felt like it was really cold to me, even though Shell and Bryan kept telling me that it was plenty warm. I shivered and turned on the hot anyway.

By this point I really wanted it over. I pushed a bit in the tub, but quickly felt like I had to pooh. I got out and went to the toilet. I poohed a little and worked through a contraction on the toilet and then it hit… My bottom split open – or at least that’s what it felt like. I jumped off the toilet and cried out “she’s coming!” Bryan had just then gone to get me more water, so Shell hollered for him to come back and he was there a second later. It was then that I really started to push.

I reached up to feel the head as I had with Thaddeus. It felt so different, so smooth, I was a little freaked out at first. It wasn’t until later that I realized what I was feeling wasn’t exactly the head – it was the head still wrapped in the membranes since my waters hadn’t broken yet.

I squatted in a sort of half kneeling half squatting position and pushed, Shell and Bryan pushed in on my hips from either side. I pushed more. There was a popping feeling and sound as my waters broke. It was 3:22am. I pushed more and reached down (Shell said I actually pushed her hands out of the way, but I don’t totally remember that) what I do remember is Bryan and I together catching our beautiful little girl. She was born at 3:25am on labor day, September 5th. She had her hand up by her ear and her chin tilted up instead of tucked down, which explained some of why the pain had been so intense.

I laid her down on the floor in front of me and waited a minute or two till I was feeling like I was back in my body and ready to pick her up. I held her for a moment, but felt pretty shaky and laid her back down in front of me as Shell gave me a shot of pitocin (we had decided to do pitocin right away after the birth since we had some concerns about hemorrhaging). Shell also gave me a drink of Chinese herbs after the shot.

After the cord had stopped pulsating we cut the cord. I remember asking Shell about waiting till I delivered the placenta and having her tell me with a little bit of urgency in her voice that she wanted to get it cut and me laying down. She showed me the cord then and it had clearly stopped pulsating so Bryan went ahead and cut it. Shell then had me lay down with the baby on my chest/belly. Bryan and Shell both kept telling me to look at them and keep my eyes open, which I remember being really annoyed with because I thought I felt fine… just tired. I remember thinking, “It’s all over now so why can’t I just rest for a second?” I also remember feeling a lot of pressure from the placenta and feeling so relieved when it was delivered. Shell said something about it coming out a different way from normal, something about how placentas coming out that way are more commonly low laying in the uterus.

Bryan was asking me what song was playing on the playlist, it was A Thankful Heart, which was the first song that had played from the playlist back at the beginning of my labor. He kept telling me to keep my eyes open and I still felt annoyed. By this point I couldn’t stop shaking, which is not uncommon for women after birth. Shell gave me some oxygen and kept asking “are you with us? Bethany! Look at me.” I guess I must have looked much worse than I felt.

Shell checked me out and told us my bleeding was really light (a big relief), she also told us I didn’t need any stitches (of course that was also a relief). I think she checked my heart rate and blood pressure as well and all was normal. She told us that physically I was perfectly fine. Nothing was wrong with me. But, she and Bryan still seemed worried about me and wouldn’t let me close my eyes. For the next little bit they seemed to focus on keeping me from passing out. Bryan brought me a couple of spoonfuls of raw honey and that seemed to really help. Once I started to feel a bit better I really wanted to sit up since my back hurt and I still felt pressure while laying on it.

I sat up, leaning against the bathroom cabinets and held Sage. It was the first time I really truly looked at her. Bryan sat next to me and we both just stared at her. It was a really sweet moment for all of us and I was glad that we were able to enjoy that time for a little while. I nursed Sage a little, but she wasn’t all that interested. I remember Shell telling us that the song that had been playing when Sage was born was “Hey Jude” – I hadn’t even noticed.

After a bit, Shell took Sage to look her over and weight her. It was about then that Brie came in carrying Thaddeus. Thad cuddled up to me and together, with Bryan next to us, we all watched as Shell checked Sage out.

She weighed 5 pounds 15 ounces and was 18.5 inches long. Shell guessed by her reflexes and size that she was actually about 38.5 weeks gestation (we had already been speculating that my original estimated due date was wrong and this confirmed it). She was a tiny little one, but healthy and strong with the most beautiful rudy coloring.

After Shell was done I got cleaned up and crawled into bed with Sage. Shell took a short nap before checking us out again and heading home to get some rest. Bryan got Thad breakfast and played with him. And thus began our very long first day as a family of four.

Rejoicing in the journey -
Bethany Stedman

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Sage’s Birth Story: Part One

October 1st, 2011

The Sunday I went into labor felt like a long day. I had spent the week before crying multiple times a day over a variety of things. The Friday before the birth my mom left for the Philippines to be with my brother and sister-in-law as their baby was in the hospital and they were still trying to figure out what was wrong. Saturday we had a nice day and my dad cooked us a wonderful dinner. Sunday morning my dad left for a business trip to Costa Rica. I spent most of Sunday feeling discouraged and down, even though Bryan and I were able to spend some nice time together during the day and we had a really nice family outing to the library in the afternoon.

I remember crying at the library. I checked email on the ipad while there and I got a really sweet and encouraging message from my friend, Melissa. In a moment when I was feeling especially discouraged about still being pregnant (I was a week past my estimated due date) she told me she was proud of me and wrote this “So today, instead of saying when is this baby going to get here?! I want you to say ‘I am one tough mama, I can handle this!! I can be patient for nature. Not everyone does this and I am proud of myself for waiting it out!!’ and give yourself a nice pat on the back. Or just pat your belly if that is easier.” It made me smile and then cry. And it made me feel a little better too. Little did I know how much I would need to hear, and remember her words that I was one tough momma in the hours to come.

My labor really got started Sunday evening around 6pm. I’d been having contractions steadily all afternoon, but they weren’t really labor contractions, they were just the same tightening feeling that I’d been having since I was about 20 weeks pregnant. But, around 6pm things changed, these contractions were different, they felt like labor. Suddenly as I felt them I remembered, really remembered, my first birth in a whole new way.

I continued having regular labor contractions as I made dinner and put Thaddeus to bed. When a contraction would hit I’d just lean over against the counter and do what I needed to do to deal with it and then go back to making dinner. We had a broccoli and green bean pasta for dinner. Bryan and I split a beer and toasted to the baby being born soon.

Dealing with the contractions got a little harder while putting Thad to sleep as they got more intense while I was nursing him. Thankfully he fell asleep quickly and I only had to work through two or three contractions while putting him to bed.

After Thad was asleep we called our midwife, Shell, and gave her a heads up about what was going on. Then I had some chocolate crème brûlée that my dad had made the night before and we tried to watch some tv. That didn’t last long.

It was getting later and things were moving along well so we started getting some stuff ready – moving birth supplies into the bedroom, changing the sheets on the bed, etc. We put on the playlist of songs I had made for the birth and danced our way through a few contractions. Shell called back to see how things were going and told us she was on her way. We called my sister and asked her to come be with Thad in case he woke up. We texted my mom (since we knew she was up any way because of the time difference in Cebu) and I sent off a quick email to some close friends who had agreed to pray with me throughout the last few weeks of pregnancy.

When Shell got here she started setting up her stuff, and helped me through a few contractions. Then we all moved out into the kitchen. Shell had one of dad’s crème brûlée’s and a coffee. Bryan and I had some tea and we all just sat and talked in-between contractions. Shell shared stories with us that made us laugh. (She really should write her memoirs some day – I know I would love to read that!)

Soon Brie arrived and joined us for a crème brûlée of her own and plenty of her own energy and talkativeness. The contractions at this point were difficult but manageable and Shell kept saying “I think you’ll be surprised. I think your farther along then you think you are.” which was of course an encouraging thing to hear.

After everyone had finished their desert and drinks we moved back into the bedroom and Shell did an internal exam – more for the opportunity to turn the baby since she was still posterior than to find out how dilated I was, but it was encouraging when she told us that my cervix was dilated to a five on it’s own but could easily stretch to an eight. My sister asked something about how much longer Shell thought it would be and Shell said something to the extent of it being up to me, that my cervix wasn’t really the issue, and it would quickly open and stretch as it needed to once I was ready and about how it was going to be more about me being ready and not afraid to push…or something like that. It was getting harder for me to concentrate at this point.

After I was checked Brie and Bryan started laying down the plastic floor covering stuff that we got to protect the carpet (my dad was worried we’d ruin the carpet in his bathroom again, like we had when my son was born). The stuff we got this time had adhesive on one side so it actually stuck to the carpet and didn’t slide around. It worked really well. My sister got really into the job of covering the carpet and even made a little “run way” from where I was laboring on the floor in the bedroom to the bathroom. It even had an arrow in the middle made out of duct tape. We all got a little chuckle out of it.

It was nice to laugh during labor – my labor with Thaddeus had been really, intense and heavy and even contemplative. Up to this point in my labor with Sage things were much lighter, more relaxed, and I felt much more present and grounded.

Once we moved into the bathroom with everything all set up I hit what I’m going to call the peeing stage of my labor. By this point the baby was very low in my pelvis and putting a lot of pressure on my bladder. For a while this was the pattern that was my reality – have a contraction, go to the toilet and pee, come back out, feel thirsty and have something to drink, have another contraction, get up again to pee, again have something to drink. It went on like this with me peeing about every two minutes for quite a while.

Then things slowed down a bit. I remember my sister asking numerous times “what are we waiting for?” and looking at her phone. I remember her asking Shell how much longer she thought it would be and how far along she thought I was now. I didn’t realize it at first but her anxiety and desire for it to be over started rubbing off on me. I was the one who really wanted it to be over, I was the one working through the pain every few minutes! My stress level rose.

I remember telling them that I felt a lot of pressure (which isn’t surprising since the baby was very low by now) and that I kind of wanted to push but didn’t really feel ready. Shell told me if I wanted to push I could try and that if I wasn’t ready it wouldn’t really do anything. For the next few contractions I pushed. Shell listened to the babies heart rate, which sounded great. The pushing felt nice with the contractions, but it didn’t really do anything.

I started to feel discouraged as Brie asked again “what are we waiting for”. There started to be longer distances between contractions. I remember during a particularly long break between contractions I thought to myself “you need to ask brie to leave” it was clear as day and I knew it was what I needed for everything to pick back up again. But I wrestled with telling her for what felt like a mini-eternity. I didn’t want to hurt her feelings, I knew she had said she really wanted to be at the birth. I had planned on having her video the birth and take pictures (as long as Thad didn’t wake up), since I was always a little sad that I didn’t have video/pictures of Thad’s birth. Would brie take it the wrong way, or would she understand? I struggled with these things for a while, but I knew I had to ask her to leave. So, I asked her to go, and she did, and pretty much immediately things picked up again.

…. check back tomorrow for the rest of the story…

Rejoicing in the journey -
Bethany Stedman

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My Story: My Wedding Ceremony and Reception

August 28th, 2010

I have a theory about weddings: On the day of the every one’s wedding something always goes wrong. Sometimes it’s a little thing, sometimes it’s a big thing, sometimes it’s easy and quick to deal with, sometimes it’s not. My friend had the ink filled tag left on her wedding dress and found it the day of the wedding. Someone else had a bumble bee fly up their pants. Sometimes the wrong flowers come. Something is bound to happen and it’s best to expect that, roll with it, and laugh.

The whole six months leading up to my wedding my parents kept telling me that “something is going to go wrong, you just need to roll with the punches.” You’d think they were paranoid I was going to go all psycho on them by how often they told me this. I guess they know me. I have a tendency to be a bit high strung and type-A and a bit of a perfectionist. I can be pretty bossy at times and especially when I was younger I had a temper to match my first-born reputation. Funnily enough I must have taken their advice to heart, or let my husband’s laid back personality rub off on me, because I think I was really calm for the six months of planning the wedding and during our Italy wedding trip. I had a few things that I really wanted – like something besides wedding cake for desert, and a good photographer, and I pushed for those things, but other than that I pretty much said whatever and let things just happen.

I decided early on that I didn’t want to be bridezilla. I didn’t want to make my bridesmaids and everyone else do and wear a bunch of things that that didn’t want to and I didn’t want to spend more than was necessary (I mean we did go to Italy, but other than that I wanted the wedding itself to be very simple). So, I let my bridesmaids each pick their own dress and I just gave them a few requirements so that they would all look good standing together. Basically I told them the dresses had to be black and had to be about knee length and that I didn’t want any of them to have exactly the same neck-line. It worked perfectly. They each choose dresses that flattered their body, that they liked and were able to wear again.

For flowers I was pretty picky about my bouquet (I wanted to have a lot of the same flowers that were in my mothers bouquet and I wanted to use some flowers that had positive traditional meanings/symbolism). But, I kept it simple and easy with the bridesmaids and had them each just carry a single long stemmed white rose. We didn’t have center pieces on the table, I didn’t pick place settings. And I let my dad pick out the menu and food for the evening.

I did sort of get in bossy take charge mode when it came to the rehearsal. I guess the director/choreographer side of me came out. And I did have one minor melt down the day of the wedding. You see the place where we were staying had three balconies. We had planned on having the ceremony on the top balcony since it had the nicest view and then doing the reception on the second balcony since it had this beautiful 900 year old tree that I thought would be lovely to eat and dance under. The day of the wedding the chef said that he wouldn’t carry the food down the stairs to the second balcony and we would have to have the reception on the first balcony. I’ll admit I did panic a little. We had to scramble to re-plan things and move the chairs and tables and we didn’t have time to rehearse the ceremony again – hence why the music for the me entering didn’t last long enough for the longer walk down the aisle on the second balcony. My dad and I ended up walking the last bit of the aisle in silence. But, really in the end I am SO glad that we switched it around. It ended up being so beautiful to get married under the giant tree and having the reception up above was perfect too. It was really how we should have planned it all along.

There were a few other little things that didn’t go quite how I wanted them – like I should have maybe been more specific in picking out our vows since I’d really wanted the old fashioned traditional “in sickness and in health, till death us do part” vows and I guess wasn’t clear enough about that with our pastor (my wonderful brother-in-law). I also didn’t realize that the photographer would want to take some more pictures after the ceremony, which I hadn’t really wanted, but it worked out fine in the end.

There are also things that I sort of wish I had done differently now. Like at the time I was uncompromising about the fact that I didn’t want posed pictures and I specifically picked a photographer who didn’t do posed pictures. Now I sort of wish we had a few nice posed one’s with some of the family. Yes, mom, you were right.

But, overall it really was the best wedding I could have ever imagined. And in the end I got to leave married to the man I love more than anyone else in the world. It was perfect.

Here are a few pictures from the day:

J37

Getting Ready

Italy Pictures 554Walking down the Aisle

Italy Pictures 566The View From Above

J45The View from Below

J44The View from the Front

Italy Pictures 395The Reception from Above

J58Celebrating

Italy Pictures 405Leaving with my hubby (The dress I wore leaving is the same dress my mom wore leaving her wedding)

Italy Pictures 406Our Get Away Car

Rejoicing in the journey-
Bethany Stedman

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