Slowly I put one foot in front of the other. To my right, windows reach from floor to ceiling. In the darkness of night I can see the snow on the rooftops below sparkling in the building’s light. To my left, a wall of glass looks down on the hospital entryway below. During the day the noises of people echo softly through this hall way, but now all is quiet.
From the top floor this hall circles the edge of the building, circles the entryway below, and as I walk it’s circles my heart circles around the same worries. Each lap taking me a little deeper into anxiety. I walk as if trying to shake off the day, trying to escape the fear that has gripped me, but with each circling lap it becomes more and more clear that it’s not working.
Only hours before I stood in the Urgent Care with my four year old son. He sat in a stroller nearly too small for his preschool body. His eyes glazed over in a motionless stare. His little face flushed with the fever which had reached 103 degrees only minutes before. He complained of a headache and begged me to hold him. My heart longed to sweep him up in my arms and cuddle his aches away. I wanted to hold him close and never let him go. But, my head recoiled. I would never hold back my love for my child just because I was fearful of catching whatever illness he had, or at least I had never thought that I would, but in that instant I had to. I had to protect myself as a means for protecting my husband.
Bryan is now half way through his chemo treatment. His white blood cells are starting to fall. The goal of this treatment is to bring his white blood cells as close to zero as possible. They literally want to destroy his immune system. Once he is neutropenic then the real treatment can be given. That is when they will give him the millions of white blood cells – his white blood cells – that they have grown and trained to fight his particular cancer. That is also when they will give him Interleukin 2 as a support for the cells they inject into him. During that time he will have no immune system, he will be dangerously susceptible to illnesses and infections of any and every kind.
I cannot risk getting sick now, because Bryan cannot risk getting sick now. I will not be separated from my husband during the most difficult thing he has ever walked through. So I say no to my son’s begging. I step back instead of stepping forward and my heart breaks. My sister flashes me an understanding and heartbroken look, before offering to hold Thad for me. “Thad, can I hold you? I’m not your mommy, but I am a mommy? Can I hold you?” My heart swells in gratitude for my sister – she has a beautifully mothering heart – but at the same time it aches for my son.
I had thought I understood stress. I thought I was already under as much stress as I possibly could stand, and then Thad came down with a fever and I felt my worst fears being realized. I couldn’t pray. I couldn’t even think. All I could picture was myself coming down with whatever Thad had and being unable to be with Bryan and then Bryan getting it anyway because he had already spent time with Thad. This has been one of my worst fears since coming to NIH. And now I felt that fear knocking on my door, threatening to come in.
Looking back on the day as I walk I try to pray. I beg God to protect Bryan and keep him well, to protect me and keep me from coming down with anything, to heal Thad and restore him quickly. Lap after lap I lay the same request before Him. But, the hall is silent and my anxiety only grows. And then as I round the corner I hear a gentle voice, “You are worrying about something you cannot control.” And I only walk faster. I want to scream, “But I WANT to control it. I don’t want to get sick. I don’t want Bryan to get sick! I don’t want anything to happen to Thad and I don’t want him to suffer through illness without his mom! I DON’T WANT THIS! It’s not right! I want to worry about this because I want to control this.”
The voice comes back again, “But you can’t control this.” And I remember my blog post from a few days ago about Worry. I remember how I had concluded that it seemed ok to me to worry about things that I could control, choices I could make – it seemed ok, and perhaps even right, to worry about the things that were within my free will.
I fight back again, “But there were decisions I could have made things I could have done to prevent this! I shouldn’t have let Thad come out here. I should have kept him home. Even today when my sister told me he woke up teary and seemed out of sorts I should have heard that as a warning sign and kept him away. I should have left him and sent him to urgent care with my sister instead of going myself and exposing myself to whatever other germs there were at the urgent care. I should have… I should have… I should have…”
The voice is gentle, “You did what you could. You made the choices that seemed best to you at the time. You took steps to protect both Thad and Bryan. You got Thad on antibiotics right away, even though that wouldn’t normally be your first course of action. You wore a mask yourself and used lots of hand sanitation and even showered before going back to see Bryan. You did what you could within your free will. So, why are you still holding on to this? Why are you still so anxious over something you can’t control?”
Finishing the lap I stop and stand still. Directly in front of me is the small hospital chapel. I move towards the doorway as if pulled by gravity. But I cannot step inside. There is a war going on within me and stepping inside would be acknowledging defeat.
In my head I know that I shouldn’t be holding on to this anxiety about something I cannot control. In my head I know that Bryan could get sick while he’s neutropenic and there could be nothing that I can do to stop it. In my head I know that I could get sick – not only from my exposure to Thad, but just from the fact that I’m hanging out in a hospital all day. I know that I cannot control whether or not those things happen. I can take steps to prevent those things from happening, but now that I have done that I should be able to let go of the anxiety and trust God to do for us what is best.
But, there is the clincher. There is the heart of the issue. Trust.
Standing in that doorway, unable to step forward and yet also unable to step back I know I face a choice. The same choice I have faced a thousand times before and will probably face a thousand times again. Will I trust?
I start to cry. Not the soft tears of acceptance, but the hard sobs of anger. I am angry that Thad got sick. Angry that there is an increased risk that I will get sick and that Bryan might get sick. But, more than that I am angry that we are here at all. It is the first time I feel it, really feel it deep in my bones, this anger at the injustice, the un-rightness, of cancer. “God, how can I trust when you are not trustworthy!?!?” The words spill out of my lips thorough desperate broken cries.
“Do you really believe that?” “YES!” I cry back. And the truth is finally out. My head may proclaim God’s trustworthiness, but my heart tells a different story. In the depths of me there is not just questioning of God and his trustworthiness there is a knowing. There is a root within me that knows without a doubt that He is untrustworthy.
And now we can really talk. Now that the heart is exposed we can really begin the battle. In the silence a simple thought comes. How do you define trustworthiness? By who’s standards do you judge your God?
By my own, of course! By my own desires and goals and wills. I want what I want and when I don’t get it, like a small child, I holler and yell and believe that God is untrustworthy. Standing in that door way that is exactly what I do. I throw a classic tantrum. I fall to my knees. I play out all of my worst scenarios in my head and ask myself at the end of each “Would God be trustworthy then? How could God be trustworthy if that happened?”
God does not defend himself. He is silent, but more present than I have ever felt him before. And then when I have few tears left to cry the words come, “Will you follow me anyway? Will you follow as Abraham did, to an alter? Will you place Thad and Bryan and Sage and all that you care for in my care, on my alter, as Abraham placed Isaac?”
Remembering the story I suddenly felt calm, “Will you give them all back to me safe and sound, as you gave Isaac back to Abraham?” But, I know as soon as I speak the words that this is not a bargaining ground. This must be trust, real trust, complete trust, heart trust. I stand again and stare through the doorway, down the isle, at the simple alter in the front of the chapel. And suddenly something breaks within me and I take that first step singing through choked tears.
You are good You are good
when there’s nothing good in me.
You are love You are love
On display for all to see
You are light You are light
When the darkness closes in
You are hope You are hope
You have covered all my sin
(Oh) I’m running to Your arms
I’m running to Your arms
The riches of Your love
Will always be enough
Nothing compares to Your embrace
Light of the world forever reign
You are peace You are peace
When my fear is crippling
You are true You are true
Even in my wandering
You are joy You are joy
You’re the reason that I sing
You are life You are life
In You death has lost its sting
You are more You are more
Than my words will ever say
You are Lord You are Lord
All creation will proclaim
You are here You are here
In Your presence I’m made whole
You are God You are God
Of all else I’m letting go
It feels like a very long walk from the doorway to the alter, but is in reality only a couple of steps. By the time I reach the alter I fall to my knees again, arms raised in the empty chapel. This is what it means to surrender. This surrender costs something. This is what it means to praise in the midst of darkness.
After a few minutes the tears ease up and I feel drawn to the podium. On the empty podium rests a large lectionary. I turn to the marked page – the reading for the second sunday in Advent:
2 When John, who was in prison, heard about the deeds of the Messiah, he sent his disciples 3 to ask him, “Are you the one who is to come, or should we expect someone else?”
4 Jesus replied, “Go back and report to John what you hear and see:5 The blind receive sight, the lame walk, those who have leprosy[b] are cleansed, the deaf hear, the dead are raised, and the good news is proclaimed to the poor. 6 Blessed is anyone who does not stumble on account of me.”
I nearly laugh when I read the passage, but instead tears begin to flow again.
Many years ago when I was in college and going through a difficult season, questioning God’s goodness, I read a book called The Prisoner in the Third Cell . It was very transformative for me and centered around this passage of scripture when John the Baptist was in prison.
Here is John in the middle of his own dark night, questioning the very Jesus whom he had proclaimed. John was faced with the same question I just wrestled with in the doorway of this hospital chapel, “Will you follow me even though you don’t understand me? Will you follow me even though I don’t do things the way you want me to do things? Will you follow me even though it might cost you everything you hold dear? Will you follow me and trust me even though I may lead you to places you wouldn’t choose to go?”
The walk away from the podium, away from the alter, out of the chapel was entirely different from the walk in. My heart was light as I crossed easily through the doorway. I will follow. I do trust.
Rejoicing in the journey,
If you'd like to help with medical bills or the other expenses related to Bryan's cancer or Sage's special needs click here. Thank you! We are forever so grateful to so many who have gotten us this far and continue to carry us forward. Grace and peace.